Skip to main content

grant · indexed from Simpler.Grants.gov API

Long-term health outcomes of people living with spina bifida

Centers for Disease Control - NCBDDD

Published
26 Aug 2026
Deadline
26 Oct 2026
Coverage
US

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB Stephanie Griswoldeut6@cdc.gov Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date.

Provenance

Indexed from Simpler.Grants.gov API · fetched 30 Aug 2026 · last updated 01 Sept 2026.

View the original notice at the source

Open this grant in the GLODA terminal

The notice above is the public record. Signing in adds the analysis: saved views and alerts on searches like this one, workflow and pipeline, exports and full workspace tooling.

Start freeSign in to open in the terminalKeep exploring the live index