Grant · indexed from Simpler.Grants.gov API
Centers for Disease Control - NCBDDD
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Provenance
The notice above is the public record. Signing in adds the analysis: saved views and alerts on searches like this one, workflow and pipeline, exports and full workspace tooling.
More like this, in public
| Field | How we know | State | Confidence |
|---|---|---|---|
| Publication date | Official API or feed | Data quality: Source-backed | 100 |
States describe GLODA's confidence in its own fields, never a judgement on the notice or its parties. Methodology
GLODA indexes publicly available notices from the funders and organizations it covers. We are an independent platform and are not affiliated with, or endorsed by, any indexed organization.
© 2026 Global Development Alliance LLC. All rights reserved.